Happy August, everyone! We hope that you are enjoying these last few weeks of summer. It’s been a busy season and we’re eager to share another month of updates.
ADVANCE is very excited to be part of the next phase of PCORnet: the launching of PCORnet 2.0 under the People Centered Research Foundation. This is a critical time for PCORnet 2.0 as new milestones and goals are crafted to take us to future possibilities in national research. We will keep all of our partners posted on developments as we move forward.
I’m happy to report that the Health Disparities CRG completed its third year on July 31st. John Heintzman, Rebecca Block, and William Pinnock collaborated with fellow CRG members and submitted a list of recommendations for the Common Data Model to increase its research readiness for studying health disparities. This was a big deliverable for the group and we are proud of what they accomplished. However, the close of Year 3, does not mean that our time with the CRG is over. John, Rebecca, and William are busy applying for a fourth year of funding to continue the CRG. In addition, they are also writing an article on the SOGI work that the CRG has produced in the past year.
As a reminder, we are seeking new members to join our Patient Engagement Panel! The PEP gives patients a way to actively use their experience to advise and guide decision makers, providers, and researchers in work to improve the kind of care we need and get. PEP members share their insights and suggestions on issues such as:
- The development of research topics and questions
- How changes to health care delivery impact patients
- How to share research findings with the general public
- How to encourage patients to take part in research
- How to improve health technologies to support care delivery and engage patients in their own care
The PEP is open to all patients who are willing to discuss their experiences, perspectives, and thoughts they relate to health research topics. You do not need to have experience serving as patient advisor or investigator to join the PEP.
If you or someone you know is interested in joining the PEP, please email our PEP Coordinators at PEP@ochin.org for more information.
We are also proud to share that third Grand Rounds series will kick off on Friday, September 21st with Dr. Sabrina Natoff-Stepp presenting on HRSA’s national strategy to address intimate partner violence. If you would like to join our Grand Rounds mailing list, please email us at email@example.com.
Finally, our ADVANCE Team is excited for our annual ADVANCE retreat, which will be held on Monday, August 13 and Tuesday, August 14th. Please contact Nikki Stover at firstname.lastname@example.org if you have any questions about the event.
As always, we appreciate your continued support for ADVANCE and look forward to sharing more next month!